Tallulah Willis shares some devastating news: ‘There are painful days’ with Dad’s dementia: Can’t ‘take any moment for granted’

Tallulah Willis confesses that her father, Bruce Willis, is still suffering from frontotemporal dementia, which makes certain days “painful.”.

During a Sept. 18 visit on the Today show, the 30-year-old provided an update on her father’s illness after Hoda Kotb expressed her admiration for Tallulah’s first-person article for Vogue in May 2023.

“I have hopes for my father that I’m hesitant to let go of,” Tallulah said in the personal essay. “I’ve always seen his personality in me, and I know we’d be such good friends if we had more time.”

Kotb stated that the message moved her before asking how Bruce, 69, was doing.

Tallulah stated, “He is stable, which is good in this situation.” “It is hard. There are challenging days, but there is a lot of love. This experience has taught me to cherish each moment, and I firmly believe that we will make wonderful friends. “I think he is very proud of me.”

The actress also mentioned that her mother, Demi Moore, provided her valuable advice on how to deal with her father’s health issues. “Be in the moment; be present,” she said.

In March 2022, Bruce’s family announced his retirement from acting due to a diagnosis of aphasia, a linguistic condition that hinders communication. However, in February, his wife Emma Heming Willis revealed that his condition had worsened and that he had frontotemporal dementia.

Frontotemporal dementia is a broad term for a group of brain disorders that affect the frontal and temporal lobes of the brain. This implies that sections of these lobes are atrophy, which can result in speech impairments, emotional troubles, and personality changes.

Other symptoms may include a loss of motor abilities, such as difficulty walking, swallowing, or experiencing muscular spasms. Symptoms tend to worsen over time. Patients commonly detect symptoms between the ages of 40 and 65; however, it can also affect younger persons. It is the most frequent type of dementia among persons under the age of sixty.

In August, Tallulah informed people that Bruce was “doing the same as the last time we kind of updated, which I’ve heard is good.” But no matter what day it is, my family and I will meet him where he is.

Tallulah also discussed her autism diagnosis last year and how she overcame the condition later in life on the Today show.

“For many years, I received a misdiagnosis at the age of 29, a common occurrence among mature women.” It felt extremely foreign to me, and it’s only been in the last year that I’ve learned all of the words and regulations,” she remarked.

“It was quite emotional. It was a relief. If I’m honest, I despised myself and believed I was broken,” she acknowledged. “So, I’ve learned that the aspects of myself that I thought were diseased, incorrect, or simply too much for this world are actually OK, and they only need a few more tools. It gave me greater grace with myself.”

Tallulah stated that autism “quickly became part of my mosaic of self” and that she has accepted her diagnosis, which is why she has spent the past year spreading awareness and being a spokesperson for the community.

“Eyes have been watching me since I was a baby. So I needed to use that platform to talk about it,” she explained. “I wasn’t sure how I was going to talk about it, but I felt a responsibility to make it meaningful because there are many people like me who are struggling.”